Angela Marcis Lofton

Hydrocephalus

Hydrocephalus Awareness Month – September While I was looking for a social media graphic to support hydrocephalus awareness month, I started to think about my own awareness of hydrocephalus and of course the multiple complications that Andrew has due to the original birth defect, spina bifida. I began thinking about Andrew’s surgeries, doctor visits and […]

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The Balance Between Fear and Unconditional Love

Nothing quite tips the emotional balance like this particular scale.  When Andrew was younger, the fear was so intense. Fear that he wouldn’t live, that he would suffer, that milestones would not be met, that he would be a vegetable. All things I was told were likely in some doctor’s office or other. Every appointment […]

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Mealtime Feeding Challenges

Sensory:  According to Chris Purgatori, MOT, OTRL, an occupational therapist, “Sensory-based feeding issues are the underlying factor to most feeding difficulties in children. The combination of food texture, temperature, and taste can be off-putting to kids, and cause frustration.” Children with sensory challenges like familiar, simple foods. Many of which do not contain the nutritional […]

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